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Project Cure Spinal Muscular Atrophy

Project Cure SMA is a collaborative initiative between Families of SMA and clinical investigators designed to help facilitate the rapid translation of promising new therapies to individuals with SMA. The primary goal of Project Cure SMA is to develop safe and well-tolerated clinical protocols to help identify effective therapies for SMA.




Project Cure SMA Team Members
Project Cure SMA Clinical Trials Manager
  • Dr. Sandra Reyna
Project Cure SMA Team Investigators
  • Dr. Gyula Acsadi, Children’s Hospital of Michigan
  • Dr. Thomas Crawford, Johns Hopkins Medical Center
  • Dr. Guy D’Anjou, Centre de Recherche de l’Hopital Sainte-Justine
  • Dr. John Kissel, Ohio State University
  • Dr. Jürgen-Christoph von Kleist-Retzow, Klinikum der Universität zu Köln
  • Kristin Krosschell, M.A., P.T., Northwestern University
  • Dr. Alberto Rosa, Sanatorio Allende, Cordoba, Argentina
  • Dr. Mary Schroth, University of Wisconsin
  • Dr. Louise Simard, University of Manitoba
  • Dr. Kathryn Swoboda (Principal Investigator), Primary Children’s Medical Center
Project Cure SMA Consultants
  • Bernie La Salle, B.S., University of Utah
  • Joanne Maczulski, O.T. R/L.
  • Thomas Prior, Ph.D., Ohio State University
  • Charles Scott, Ph.D., Children’s Hospital of Philadelphia
May 19, 2009